![]() People compliment his eyes, especially their unique shade and their ability to change colour. "What I like about the condition is that you get noticed a lot." When asked about what he likes about the condition now, the youngest brother Rafi replies: "I like who I am, and the human being I became." Being Asian but being white, it gives me a unique outlook on life, it gives me a very unbiased opinion of society and humanity." "Over time, I have now come to like my condition because it makes me very unique. Today, surrounded by an expanding family but always with her beloved team by her side, Naseem has grown to like her condition and who she has become as a person. "I supported them, and they supported me by being the same as me. For me, I had no role model to follow: so I was the role model for them. "I was the eldest and very much like the mother figure. "As siblings, we all supported each other," Naseem recalls. Through the difficulties, the siblings could always count on the safe harbour represented by their older sister, Naseem. "Our sight is not as good, but we always knew that if we stand together no one can do us harm." "People bully because they are uneducated and we actually tried to educate them." - GhulamĪs the youngest brother, Rafi, recounts, the six siblings also helped each other due to their impaired eyesight. However, they confronted the hate and ignorance by educating others and sticking together as one, finding support and love in the family. ![]() We did experience being bullied or being sworn at." "During school and college, when we were quite young, we always sort of kept to ourselves together. "It's a condition that both parents have to carry for it to present in the offspring."Īs explained by Ghulam Ali, during their childhood and school years, the siblings all faced bullying and stigma. There's a gene that goes faulty and, hence, you have the condition." It’s a lack of pigment which you are born without. ![]() "Albinism affects the eyes, the skin and the colour in your hair. When asked about her genetic condition and how it presents, Naseem clarifies: Advertisements ![]() The chemical is also involved in the development of the optical nerve, which may signify impaired eyesight. Melanin is a chemical in the body that determines the colour of skin, hair and eyes. "One blessing was that our albinism made us closer than other siblings because we all shared something different, very unique." AdvertisementsĪll the siblings are affected by albinism, a genetic condition involving the production of melanin, which they inherited from their parents, Pakistani-born couple Aslam Parvez and Shameem Akhtar. They are proud of themselves and of their tight relationship, and work extensively to educate people on the condition. And this is Ghulam, the funny one." – Naseem ![]() This is Muqagas, and she’s a perfectionist. "This is Rafi, the youngest and the cheekiest one. With a proud smile, Naseem introduced us to her brothers and sisters: She "is the clever one", her siblings say. "I'm Naseem Akhtar, and this is my family", says Naseem – who works as an NHS rehabilitation officer, the "mother figure" of this close-knit clan. ![]()
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